Christopher Ikonomou, a 21-year-old student living in Los Angeles, loves horror movies. In fact, he attended a horror convention just last week. But there is one aspect of the genre that's deeply ...

Schreiber High School senior Mazzy Sass is working to raise awareness about Marfan Syndrome, a genetic condition that affects the body’s connective tissue, which holds all the cells, organs and tissue ...

Michael’s wife, Teresa, added, “If we can save a life, we will tell anyone our story.” It’s a story that could have ended when Michael was 14 years old, when he had his first aneurysm. Michael had ...

The walk, benefiting those living with Marfan syndrome, a genetic connective tissue disorder that can be life-threatening if left untreated, will be held Sunday from noon to 3 p.m. at T.Y. Park at ...

Haley Langford, a 12-year-old South Florida seventh grader, is facing that challenge head-on while advocating for others living with Marfan syndrome, a genetic connective tissue disorder that can be ...

STATEN ISLAND, N.Y. -- There is a connective tissue disorder that affects the bones, skin, lungs, heart, blood vessels and nervous system of one in every 5,000 Americans: Marfan syndrome. Members of ...

WHITEHOUSE, Texas — A Whitehouse ISD student with a rare disease is making headlines in part to her fight with Marfan syndrome, and her love for Rice University baseball. "The night we actually saw ...

HOUSTON – A former NBA draft prospect whose basketball career ended because of a rare disorder started a new job as National Walk Ambassador for the Marfan Foundation in Houston Thursday night. Isaiah ...

SCOTTSDALE, AZ — Beckett Hotchkiss, an 11-year-old boy, is bringing attention to a genetic disorder known as Marfan Syndrome. He's taken his push all the way to the capitol, with the hopes of better ...

The European Medicines Agency (EMA) has designated allopurinol as the first orphan drug for the treatment of Marfan syndrome, a rare connective tissue disease which has no cure to date. This disease ...

Members of the Rice baseball team found out about Jaelyn Kirby's new-found fandom and rewarded her on Wednesday. Thursday, February 22, 2024 HOUSTON, Texas (KTRK) -- Often, hospital patients look for ...