In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...

A gene-therapy gel designed to treat the rare genetic condition "butterfly disease" showed success in a late-stage trial. When you purchase through links on our site, we may earn an affiliate ...

Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

The new treatment was tested in a small trial. When you purchase through links on our site, we may earn an affiliate commission. Here’s how it works. A new gel that contains DNA shows promise in ...

This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On September 21, the Epidermolysis Bullosa Medical Research Foundation hosted its 7th annual event in Malibu, Calif., ...

Your skin acts as a vital health indicator, with changes like butterfly rashes, velvet plaques, or tripe palms signaling ...

For the first time, doctors were able to treat a child who had a life-threatening rare genetic skin disease through a transplant of skin grown using genetically modified stem cells. For the first time ...

Also check out Saint Louis Chamber Chorus, Voices of Change, "Protest: From Martin Luther to Bob Dylan" on the St. Louis Patch calendar ...

66% of those with lupus will develop some form of skin disease. In this episode of The Expert Series, Victoria Werth, MD will teach you about how lupus can affect the skin as she describes skin lupus ...

ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...